Table of contents

Foreword / Rod McCormick

Introduction / Wendy Hulko, Jean E. Balestrery, and Danielle Wilson

We Call It Healing / Secwepemc Elder, Wendy Hulko, Danielle Wilson, Star Mahara, Gwen Campbell-McArthur, Jean William, Cecilia DeRose, and Estella Patrick Moller

Part 1: Prevalence, Causes, and Public Discourse

1 Current and Projected Dementia Prevalence in First Nations Populations in Canada / Jennifer Walker and Kristen Jacklin

2 Indigenous Vascular Dementia: An Indigenous Syndemic Dementia Model / J. Neil Henderson, Linda D. Carson, and Kama King

3 A Story about Joe in the News Media: Decolonizing Dementia Discourse / Suzanne MacLeod

Coyote: Keeper of Memories / Danielle Wilson, Gwen Campbell-McArthur, Wendy Hulko, Star Mahara, Jean William, Cecilia DeRose, and Estella Patrick Moller

Part 2: Indigenous Perspectives on Care and Prevention

4 Perceptions of Dementia Prevention among Anishinaabe Living on Manitoulin Island / Jessica E. Pace, Kristen Jacklin, Wayne Warry, and Karen Pitawanakwat

5 The Understanding from Within Project: Perspectives from Indigenous Caregivers / Carrie Bourassa, Melissa Blind, Kristen Jacklin, Eric Oleson, and Kate Ross-Hopley

6 Oldest Age Does Not Come Alone: “What’s the Name of the Day?” / Mere Kēpa

A Fecund Frontier: We Listen ... in between Talk ... We Listen / Jean E. Balestrery and Sophie “Eqeelana Tungwenuk” Nothstine

Part 3: Applying Theory and Knowledge to Practice

7 Depression, Diabetes, and Dementia: Historical, Biocultural, and Generational Factors among American Indian and Alaska Native Elders / Linda D. Carson, J. Neil Henderson, and Kama King

8 Adapting CIRCA-BC in the Post-Residential-School Era / Barbara Purves and Wendy Hulko

9 Focus(ing) on Love and Respect: Translating Elders’ Teachings on Aging and Memory Loss into Learning Tools for Children and Youth / Wendy Hulko, Danielle Wilson, and Jessica Kent

Conclusion / Wendy Hulko, Jean E. Balestrery, and Danielle Wilson


Indigenous People and Dementia brings together research and Indigenous knowledge on memory loss and memory care in later life to assist students, practitioners, and educators to decolonize their work with Indigenous peoples.


Health organizations in Canada, the United States, and New Zealand are responding to the urgent need for guidance on how best to address dementia in Indigenous communities. This innovative volume brings together, for the first time, research studies and Indigenous teaching stories on this topic. This book presents strategies for health practice and effective collaborative research informed by Indigenous knowledge and worldviews for researchers, practitioners, students, and educators.